DYSTONIA MEDICAL RESEARCH FOUNDATION (EIN 953378526) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1977

Legal Domicile

Principal Officer

JANET HIESHETTER

Phone

3127550198

Tax Period

2024-01-01 to 2024-12-31

DYSTONIA MEDICAL RESEARCH FOUNDATION, founded in 1977, is a community nonprofit in the Medical Research sector that reported $3.2M in total revenue in fiscal year 2024. Expenses of $3.0M left a modest 8% surplus.

Mission

THE MISSION OF THE DMRF IS TO ADVANCE RESEARCH FOR MORE EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR DYSTONIA, TO PROMOTE AWARENESS AND EDUCATION AND TO SUPPORT THE WELL BEING OF DYSTONIA AFFECTED INDIVIDUALS AND FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,851,281

Program Service Revenue $0

Investment Income $327,960

Other Revenue $35,511

TOTAL REVENUE $3,214,752

Expense Breakdown

Grants Paid $973,113

Salaries & Benefits $870,581

Fundraising Expenses $250,485

Program Expenses $2,362,587

Other Expenses $1,115,629

TOTAL EXPENSES $2,959,323

Year-over-Year Comparison

	2024	2023	Change
Revenue	$3,214,752	$2,986,859	+0.1%
Expenses	$2,959,323	$3,393,987	-0.1%
Net Income	$255,429	$-407,128	-1.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

725

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$199,869

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
JANET HIESHETTER	Sec/EXEC DIR	59.00	Officer	$183,898	$15,971	$199,869
DEBORAH DURRER	DIR DEVELOPMENT	38.00		$96,599	$33,498	$130,097
JENNIFER MCNABOLA	DIR FINANCE	30.00		$95,167	$29,167	$124,334
MARK RUDOLPH	President	5.00	Officer Director	$0	$0	$0
JOHN DOWNEY	Treasurer	3.00	Officer Director	$0	$0	$0
RICHARD LEWIS	Vice President	2.00	Officer Director	$0	$0	$0
BARBARA KESSLER	Vice President	2.00	Officer Director	$0	$0	$0
KAREN ROSS	Vice President	2.00	Officer Director	$0	$0	$0
CAROLE RAWSON	Vice President	2.00	Officer Director	$0	$0	$0
PAULA SCHNEIDER	Vice President	2.00	Officer Director	$0	$0	$0
Ron Hersh	Vice President	3.00	Officer Director	$0	$0	$0
Allison London	Director	1.00	Director	$0	$0	$0
FRANCES BELZBERG	Director	1.00	Director	$0	$0	$0
MARILYNNE HERBERT	Director	1.00	Director	$0	$0	$0
STEFANIE JACKSON	Director	1.00	Director	$0	$0	$0
DIANE RUDOLPH	Director	1.00	Director	$0	$0	$0
JOEL PERLMUTTER MD	Scientific Dir	3.00	Director	$0	$0	$0
ERWIN JACKSON	Director	1.00	Director	$0	$0	$0
BILL MCLAUGHLIN	Director	1.00	Director	$0	$0	$0
Art Kessler	Director	1.00	Director	$0	$0	$0
SANDRA WEIL	Director	1.00	Director	$0	$0	$0
ROSALIE LEWIS	Director	1.00	Director	$0	$0	$0
Jon Davis	Director	1.00	Director	$0	$0	$0
Dennis Kessler	Director	1.00	Director	$0	$0	$0
LIZ RAWSON	Director	1.00	Director	$0	$0	$0
Chris Von Der Ahe	Director	1.00	Director	$0	$0	$0
BRIAN KEANE	Director	1.00	Director	$0	$0	$0
Marc Miller	Director	1.00	Director	$0	$0	$0
Robin Miller	Director	1.00	Director	$0	$0	$0
DAN LEWIS	Director	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$3,214,752	$2,959,323	$6,422,430	$255,429
2023	$2,986,859	$3,393,987	$6,443,694	$-407,128
2022	$2,569,110	$2,496,291	$6,256,038	$72,819
2021	$2,942,734	$2,472,524	$6,898,919	$470,210
2020	$2,515,900	$2,250,219	$6,071,766	$265,681
2019	$2,689,900	$2,620,294	$5,351,796	$69,606
2018	$2,417,667	$2,670,058	$4,662,461	$-252,391

DYSTONIA MEDICAL RESEARCH FOUNDATION