DOWN SYNDROME ASSOCIATION OF ORANGE COUNTY

EIN: 953497922 501(c)(3)

COSTA MESA, CA

Total Revenue
$313,538
Total Expenses
$396,130
Total Assets
$800,631
Net Assets
$619,160
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1979
Legal Domicile
CA
Principal Officer
KRISTIN GRIFFIN
Phone
7145405794
Tax Period
2024-01-01 to 2024-12-31

DOWN SYNDROME ASSOCIATION OF ORANGE COUNTY, founded in 1979, is a small nonprofit that reported $314K in total revenue in fiscal year 2024. Expenses of $396K exceeded revenue, resulting in a 26% operating deficit.

Mission

DSAOC'S MISSION IS TO CREATE A PLACE FOR CONNECTION, INFORMATION AND HOPE FOR PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES THROUGHOUT GREATER ORANGE COUNTY, TO PROMOTE DOWN SYNDROME AWARENESS THROUGH COMMUNITY OUTREACH, AND TO OFFER PROGRAMS, SERVICES AND SUPPORT THAT AIM TO EMPOWER INDIVIDUALS WITH DOWN SYNDROME TO REACH THEIR FULL POTENTIAL. OUR VISION IS TO BE A ONE-STOP-SHOP FOR ALL THINGS DOWN SYNDROME RELATED, AND TO BE A MODEL ORGANIZATION FOR COMMUNITY COLLABORATION AND DOWN SYNDROME AWARENESS, TO CHANGE PERCEPTIONS AND CHANGE LIVES.

Program Service Accomplishments

Program 1
Expenses: $266,436 Revenue: $37,097

DSAOC CENTER - A PLACE TO BELONG THE DSAOC CENTER, LOCATED IN COSTA MESA, IS THE VENUE FOR MANY OF OUR ACTIVITIES, EVENTS, SEMINARS, AND SUPPORT GROUPS. IN ADDITION, MUCH OF THE DSAOC'S WORK INCLUDES...

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DSAOC CENTER - A PLACE TO BELONG THE DSAOC CENTER, LOCATED IN COSTA MESA, IS THE VENUE FOR MANY OF OUR ACTIVITIES, EVENTS, SEMINARS, AND SUPPORT GROUPS. IN ADDITION, MUCH OF THE DSAOC'S WORK INCLUDES OUTREACH AND COLLABORATION WITH AN EXPANDING NETWORK OF EDUCATORS, HEALTHCARE PROVIDERS, RESEARCHERS, THERAPISTS, EMPLOYERS, POLICYMAKERS, AND MANY OTHERS IN THE COMMUNITY. OUR MISSION IS TO CREATE A PLACE FOR CONNECTION, INFORMATION AND HOPE FOR PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES. AT OUR LOCAL SUPPORT GROUP MEETINGS AND SOCIAL EVENTS, FAMILIES FIND COMFORT, SUPPORT AND LONG-LASTING FRIENDSHIPS. DSAOC ALSO PROVIDES A FULL RANGE OF SERVICES IN SPANISH AND, INCREASINGLY, IN OTHER LANGUAGES.

Program 2
Expenses: $21,068 Revenue: $48,139

TEEN/ADULT PROGRAMTHE TEEN/ADULT PROGRAM INCLUDES WEEKLY AND MONTHLY CLASSES AND ACTIVITIES THAT FOCUS ON SOCIAL, PHYSICAL AND MENTAL WELLNESS. THE TEEN/ADULT PROGRAM ALSO FEATURES AN AWESOME...

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TEEN/ADULT PROGRAMTHE TEEN/ADULT PROGRAM INCLUDES WEEKLY AND MONTHLY CLASSES AND ACTIVITIES THAT FOCUS ON SOCIAL, PHYSICAL AND MENTAL WELLNESS. THE TEEN/ADULT PROGRAM ALSO FEATURES AN AWESOME ADVOCATES GROUP THAT PARTICIPATES IN COMMUNITY ACTIVITIES AND HELPS PLAN FUTURE ACTIVITIES. DSAOC ALSO HAS A VARIETY OF DANCES AND SOCIAL MIXERS FOR THIS AGE GROUP.

Program 3
Expenses: $13,786 Revenue: $21,150

ORANGE COUNTY BIKE CAMPSINCE 2008, DSAOC HAS BEEN HELPING CHILDREN, TEENS AND ADULTS WITH DOWN SYNDROME AND OTHER DISABILITIES LEARN TO RIDE A CONVENTIONAL 2-WHEEL BIKE. THROUGH A COLLABORATION WITH...

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ORANGE COUNTY BIKE CAMPSINCE 2008, DSAOC HAS BEEN HELPING CHILDREN, TEENS AND ADULTS WITH DOWN SYNDROME AND OTHER DISABILITIES LEARN TO RIDE A CONVENTIONAL 2-WHEEL BIKE. THROUGH A COLLABORATION WITH ICANSHINE AND UCP-OC, THE ORANGE COUNTY BIKE CAMP IS HELD ANNUALLY DURING THE SUMMER AND SUPPORTS 40 PARTICIPANTS EACH CAMP. BENEFITS TO THIS CAMP INCLUDE, ENHANCED HEALTH AND CONFIDENCE, IMPROVED ABILITY TO PARTICIPATE IN SOCIAL AND RECREATIONAL ACTIVITIES WITH TYPICAL PEERS, INCREASED PARTICIPATION IN FAMILY ACTIVITIES, WITH FEWER SPECIAL ACCOMMODATIONS, PROUD, SELF-CONFIDENT, INDEPENDENT INDIVIDUALS RIDING REGULAR BICYCLES SAFELY IN THEIR NEIGHBORHOODS, AND IMPROVED TRANSPORTATION INDEPENDENCE FOR TEENS AND YOUNG ADULTS.

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Trantor Score

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $192,746
Program Service Revenue $106,386
Investment Income $8,669
Other Revenue $5,737
TOTAL REVENUE $313,538

Expense Breakdown

Grants Paid $0
Salaries & Benefits $196,260
Fundraising Expenses $47,299
Program Expenses $301,290
Other Expenses $199,870
TOTAL EXPENSES $396,130

Year-over-Year Comparison

2024 2023 Change
Revenue $313,538 $325,453 0.0%
Expenses $396,130 $340,499 +0.2%
Net Income $-82,592 $-15,046 +4.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
11
Independent Members
11
Employees
7
Volunteers
260

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$64,131
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
KRISTIN GRIFFIN PRESIDENT 5.00
Officer Director
$0 $0 $0
JAMIE BREWER VICE PRESIDENT 3.00
Officer Director
$0 $0 $0
STEVE CEARLEY TREASURER 5.00
Officer Director
$0 $0 $0
AMY ERSKINE-CARMONA SECRETARY 4.00
Officer Director
$0 $0 $0
ERIC DORAN MS DIRECTOR 2.00
Director
$0 $0 $0
MICHAEL G KING ESQ DIRECTOR 2.00
Director
$0 $0 $0
ESTEBAN LOPEZ DIRECTOR 2.00
Director
$0 $0 $0
DR BECCA OBERFIELD DNP CPNP DIRECTOR 2.00
Director
$0 $0 $0
KELLY SACKETT DIRECTOR 2.00
Director
$0 $0 $0
LAUREN VANDENBERG DIRECTOR 2.00
Director
$0 $0 $0
JONATHAN D SANTORO MD DIRECTOR 2.00
Director
$0 $0 $0
KELLIE A PEREZ-TUCHOWSKI EXECUTIVE DIR. 40.00
Officer
$64,131 $0 $64,131
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 $313,538 $396,130 $800,631 $-82,592
2023 $325,453 $340,499 $853,269 $-15,046
2022 $269,009 $283,290 $731,660 $-14,281
2021 $357,189 $256,695 $742,121 $100,494
2020 $263,705 $307,915 $677,341 $-44,210
2019 $334,233 $311,730 $690,047 $22,503
2018 $429,230 $315,066 $666,141 $114,164
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