KENNEDY'S DISEASE ASSOCIATION INC

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2000

Legal Domicile

Principal Officer

TERRY THOMPSON

Phone

8555327762

Tax Period

2025-01-01 to 2025-12-31

KENNEDY'S DISEASE ASSOCIATION INC, founded in 2000, is a small nonprofit in the Medical Research sector that reported $746K in total revenue in fiscal year 2025. Revenue grew 10% year-over-year, indicating healthy expansion. Expenses of $1.1M exceeded revenue, resulting in a 47% operating deficit.

Mission

TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY).

Program Service Accomplishments

Program 1

Expenses: $931,000

TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY).

Program 2

Expenses: $8,209

TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS.

Program 3

Expenses: $63,896

TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY).

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $740,506

Program Service Revenue $0

Investment Income $23,556

Other Revenue $-18,388

TOTAL REVENUE $745,674

Expense Breakdown

Grants Paid $991,831

Salaries & Benefits $0

Fundraising Expenses $71,746

Program Expenses $1,003,105

Other Expenses $49,387

TOTAL EXPENSES $1,099,089

Year-over-Year Comparison

	2025	2024	Change
Revenue	$745,674	$679,008	+0.1%
Expenses	$1,099,089	$669,795	+0.6%
Net Income	$-353,415	$9,213	-39.4%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

162

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
TERRY THOMPSON	PRESIDENT	20.00	Officer Director	$0	$0	$0
JAMESON PARKER	VICE PRESIDE	5.00	Officer Director	$0	$0	$0
JOHN LAUBER	TREASURER	20.00	Officer Director	$0	$0	$0
KATHY THOMPSON	SECRETARY	15.00	Officer Director	$0	$0	$0
NICK HOLDGATE	BOARD MEMBER	3.00	Director	$0	$0	$0
RON MOFFETT	BOARD MEMBER	8.00	Director	$0	$0	$0
LEW MYERS	BOARD MEMBER	12.00	Director	$0	$0	$0
STEVEN RITTMASTER	BOARD MEMBER	2.00	Director	$0	$0	$0
PETE SARIANO	BOARD MEMBER	3.00	Director	$0	$0	$0
JOAN SORENSEN	BOARD MEMBER	4.00	Director	$0	$0	$0
DALE TRAXLER	BOARD MEMBER	2.00	Director	$0	$0	$0
RANDY SOO HOO	FORMER BOARD	6.00	Director	$0	$0	$0
SIMON HILL	FORMER BOARD	6.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$745,674	$1,099,089	$532,282	$-353,415
2024	No data	No data	No data	No data
2023	$454,537	$499,149	$761,855	$-44,612
2022	$349,920	$195,977	$764,527	$153,943
2021	$293,954	$184,343	$581,584	$109,611
2021	$293,954	$184,343	$581,584	$109,611
2020	$195,774	$202,393	$493,173	$-6,619
2019	$196,696	$313,150	$579,842	$-116,454
2018	$183,107	$216,696	$620,046	$-33,589